Talk: Eugenics in California & the World: Race, Class, Gender/Sexuality, & Disability

This weekend I talked briefly about my work exploring the link between psychiatric policy and the eugenics movement as part of a virtual symposium on the legacy of eugenics today. This symposium was livestreamed onto YouTube and remains available here for any who wish to watch. There are also transcripts of talks available here. Please share these links freely to spread awareness about this important subject. This event provides a fantastic overview of the current state of research on eugenics and its links to the present, and highlights the urgent need for greater understanding of eugenics among clinicians, scientists, educators, policymakers, and the general public.

This event had a number of firsts for me. It was my first time connecting with so many experienced scholars and activists focused explicitly on challenging eugenics, my shortest presentation on my anti-eugenic work, and my first time presenting in front of my former thesis advisor. I was so nervous! It’s remarkable how much EASIER it is to put together a competent one-hour lecture than a competent ten-minute talk. There was so much I meant to say and didn’t get to!

At the same time, it was reassuring to notice that there were few surprises in terms of who major players are, and some of the frameworks leveraged by much more experienced scholars in this field were practically word for word things in my own notes. I’d written something the morning of Saturday’s sessions and then heard almost the exact same concept tentatively proposed by one of the other presenters! It was encouraging to feel on the same page with people who have been working in this area for decades, and it gives me a lot more confidence in terms of my analysis.

Attending narrower conferences that are explicitly oriented to challenging the prison industrial complex and the eugenics movement has also meant connecting with spaces where everyone is committed to anti-oppressive work, versus discipline-based conferences where some sessions are anti-oppressive in their commitments and others are overtly racist and carceral in nature.

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How to Ask for (and Give) Good Reassurance

I stumbled on this reflection from my clinical internship and wanted to share it again. Reassurance is hard for me, and maybe for you too.

In session, Max encourages our client to stop asking for reassurance, and I feel my body quietly tense in response. It is safe for Max and I to disagree; in fact, it has been a valuable resource in our relationship as scholars and activists for years and it is now a valuable tool in our therapy practice. I often hear Max telling clients that reassurance only feeds anxiety. It does not comfort.

This provokes curiosity and consternation in me because I, a very anxious person, think of myself as using reassurance frequently and effectively, including in my relationship with her. Moreover, when I ask her for reassurance in the way I do, she supplies it without discouragement of the practice (and I wonder if she does so without noticing that is what I am asking for). Our disagreement in session allows us to explore our thoughts about reassurance and satisfaction with each other and the client, leading to a session that seems satisfying all around. We continue our productive disagreement into the charting room, and at the end she says “good. Now go write a Facebook post.”

And so, without further ado, some dialectically derived tips on getting and giving reassurance that actually reassures:Generic reassurance is almost never comforting.

Often, reassurance takes the form of something like “no, you’re great!!!” and this does nothing, I think because it does not answer the question. Likewise, reassurance does not help when it is specific but misses the point. If I go to my partner in a panic saying, “I don’t know if I can get through grad school,” my partner might say, “of course you can!” or “that’s okay, I’ll love you even if you drop out” or “don’t say that, you’re so smart.” These are extremely different types of reassurance–you can do this, I’ll still love you, you’re smart. And any of these COULD be the reassurance I needed. Or none of them. Maybe the reassurance I need is actually something like, “this is extremely difficult and it’s reasonable to feel scared about it.” Maybe it’s “yeah this system is exhaustingly transphobic but I’m going to be here the whole time and we’ll find a strategy together.” Maybe it’s “you don’t HAVE to do this.” The right reassurance is the reassurance that answers the question.

1. What’s the question?

Yeah. That’s the hard part. That’s where reassurance goes off the rails, feels empty or even anxiety-producing. Because, for instance, if I need to hear that my fears are reasonable and someone says “no, you’re so smart!” my anxiety brain might go “wait should I also be worried that I’m not smart enough oh god am I not smart enough why did no one tell me I might not be smart enough????”

Anxiety points to values. We feel anxious about things that are important to us. Reassurance, in its relationship with anxiety, asks us to reach out to an important other to reaffirm a value that is so important it feels like a wound. But the same situation could provoke anxiety around many different values, and it may not be immediately obvious what is happening (especially for the hapless friend or partner who seeks to reassure).

When anxiety requests connection and affirmation in the form of reassurance, one option is to say yes, I’d love to get that for you. But first, may I take some measurements? I want it to fit perfectly.

What is underneath the anxiety? What is the fear present?

For a while, any time I met a new person socially, no matter how well it goes, my anxiety would inform me that TRAGICALLY that person thought I am a horrific racist and UNFORTUNATELY they were correct. This anxiety points to two important values for me: antiracism, and values-centered relationships. The way for my anxious brain to hurt me, then, was to respond to a positive social interaction with an imagined scenario in which I was reviled for failing at a value that is important to me. For me, in this scenario, the questions were, “what evidence did I receive about how these new people responded to me?” and “did I enact racism in that encounter?”

2. Who can answer this question?

Okay maybe THIS is the hard part. Because if we already have anxiety, we are likely to turn to the people we trust the most with our vulnerabilities, and those people may or may not be positioned to reassure us. If my friend came to me with anxieties about being good at speaking Greek and I assured them that actually they are amazing at Greek, my reassurance would be kind but useless because I speak zero Greek. I cannot render a useful reassurance on this point. I can offer things like “haven’t you maintained excellent grades in Greek classes?” or “I also feel like a complete pudding in language courses” or “why don’t we do some flash cards?” but I cannot usefully say “no, you’re great at it” because what do I know?

Sometimes the person who can give the right reassurance cannot be asked. In the example I gave earlier, for instance, it would actually not be at all appropriate for me to call up every new person I meet and say “hey just checking in, how racist did I seem this morning?” Because, among other things, if I met someone and their impression of me was that I was horrifically racist, and they chose not to say anything about it, that was likely a calculation about their safety, and chasing them down would not actually be in service to my values about antiracism or values-centered relationships. In such cases, some helpful options are to provide internal appraisal and self-reassurance. “Is there any reason to think that I enacted racism in that encounter? There are no places where the room went cold, where the wind changed, where they pulled away or seemed uncomfortable… and in fact, the person I just met asked if they could hug me, which is not a way people respond to horrific scary racists they hate and revile, so actually that is probably the reassurance right there, yeah?” and to get second-order affirmation about the experience of anxiety with a friend who understands anxiety, like “yep my brain does that too and it is the WORST but you handled it super well.”

Sometimes it can even be reassuring to say that you’re not really a useful reassurance-giver on the subject but you’re there for the person. “I don’t know anything about Greek but I see you working really hard and I believe in you” might be more comforting than “you’re awesome at Greek, buck up champ!”

A big factor in who can answer the question is credibility, and that includes both specific authority on the subject (e.g. “you’re a great mom!” from a mom versus a non-parent) and trustworthiness. I encouraged the client yesterday to seek reassurance from the friend who is least likely to say something to other people “just to be nice” and when friends accuse me of reassuring them “just to be nice” I challenge them to think of a time they’ve seen me say something nice to anyone that I did not mean.

2.5. What kind of answer do you want?

Gosh this part is pretty tough too. One way that reassurance fails is when people ask questions opposite the ones they really want to ask. Often people ask for appraisal when they want reassurance, and then do not trust friends’ appraisals because they assume friends are simply being reassuring. Do you want someone to cosign a decision you are afraid to make? Or do you want an honest appraisal? Or do you want someone to cosign UNLESS there is a massive red flag?

The specific language you use will be specific to your own context and relationships but here’s language that I would use in my own life:

  • “I know you’ve been really stressed but my anxiety is telling me you’re mad at me. Can you remind me that you love me?”
  • “I’m feeling so overwhelmed and useless right now. Could you just like… cuddle me and give me compliments?”
  • “Can I check in about the negative feedback our department got recently? I’m feeling a little unclear about how big a problem this is and what specifically should change.”
  • “I feel like a complete failure at everything. Is grad school just this hard? Or am I doing it badly?”
  • “I am about to send out this article and I don’t really have time for a major rewrite but could you glance over it and tell me if anything in it would like, ruin my career?” (I use this often)

3. Can I receive reassurance?

Okay no THIS is the hard part. For real this time. Sometimes the answer to “who can answer this question” is nobody, not because no one has the authority or generally tells the truth, but because the asker generally dismisses positive feedback. If you struggle with compliments and reject positive feedback generally, it may be very difficult to find satisfying reassurance.

I conceptualize this as tightly related to the concept of foreboding joy. Joy is a vulnerable feeling, and a way to discharge the vulnerability of joy is to ruin it, either through literal self-sabotage or by rehearsing disappointment in the face of joy. Like, for instance, by responding to a positive interaction with whole-body anxiety that Tragically you are hated and reviled and immoral. For instance.

To receive effective reassurance, you may need to practice receiving in general. I have a mindfulness practice based on something my rabbi told me about the wonder of createdness, which is extremely easy and lovely to do even if you don’t have this problem, and it goes like this:

When you notice a thing that you like, ever throughout your day, pause in what you are doing for 3-5 seconds and inhabit the sensation of enjoying the thing. For me, this is often birds and flowers I notice as I walk around my neighborhood. I enjoy birds and flowers. But you might enjoy cars or clouds or the noises of children or the scent of cooking or any number of wonderful things. As you get into the habit of noticing and enjoying, start to linger a little bit longer. Maintain the feeling of enjoying until you become bored of it. A flower or bird or smell or a nice car will not captivate you forever. Spend a few minutes occupying an enjoyed thing every now and then. As you build tolerance, try inhabiting enjoyment of experiences with other people. Then try inhabiting enjoyment of yourself, not as a conduit of experiences or sensations but as a being, as if encountering yourself from the outside and deciding that you would like to be friends.

The last step took me about a year of this practice. So. It’s a journey.

This is what I know about getting reassurance so far.

  • Notice the question underlying the desire for reassurance.
  • Find the person who can answer that question (in terms of authority, trust, and appropriateness).
  • Ask for that thing, specifically.
  • Receive.

How to give good reassurance

This is a little bit harder because you have less access to the crucial information. But you can get it by asking yourself or your friend good questions.

  • Notice your friend’s values. Give spontaneous affirmations or solicited reassurance that connects with their values. It is so lovely to hear that you are showing up in the world in alignment with your core values.
  • If you don’t know what value is on the table when someone asks for reassurance (and you can/want to), explore their anxiety to get clearer about what would help most.
  • Name when your positionality compromises your reassurance but don’t stress about it. It’s not a failing.
  • Don’t say stuff just to be nice. Be able to point to that when someone worries that you’re just saying something to be nice. If you feel tempted to say something you don’t feel just to be nice, don’t! Instead, say the thing that’s both kind and true.

I’m glad you’re here! If you’d like to support my work and help me make things available as widely as possible, share my work with friends and colleagues! You can also support my work financially by making a one-time donation at ko-fi or (brand new!) by joining my Patreon. There’s reward tiers tailored for individual, clinician, and organizational patrons.

UCLA: Gender is the Opposite of Fat

I was so excited to participate in the UCLA Body Liberation Series and I’m even more excited to be able to share links to both my talk and some of the other amazing talks in this series. This talk gave me an opportunity to zoom in on the way gender norms posit implicit duties of nonfatness for people of all genders, and how that works for people approaching navigating gender transition. If you want to read more about my work on antifatness and transition, there will also be a chapter on this part of my work in the forthcoming volume of Advances in Gender Research which should be out in November of this year.

I’m really pleased that UCLA asked me for permission to record my talk and that they’re making these videos available beyond the UCLA community. It’s really important to me to be able to make my work as available as possible, because a lot of people who need access to research and educational materials don’t have the funding to buy access to it.

If you’d like to support my work and help me make things available as widely as possible, share my work with friends and colleagues! You can also support my work financially by making a one-time donation at ko-fi or (brand new!) by joining my Patreon. There’s reward tiers tailored for individual, clinician, and organizational patrons.

Thanks for being here, and I’d love to know what you think of the UCLA talks!

Getting Trans Clients Through Insurance Barriers for Gender-Affirming Care

Trans people in the US face many barriers to competent and affirming healthcare; the healthcare we need isn’t always legal, and even when it is legal to provide us care, providers and systems are systematically unprepared to meet our needs (see my piece on trans care and electronic health records). While these barriers impact every single element of transgender people’s healthcare, including things like emergency care and dentistry, there are extra barriers to care relating to gender-affirming interventions like hormone therapy and surgical care.

One of the biggest barriers to transition care is the referral letter. In order to get insurance coverage and sometimes in order to get care at all, trans people are routinely forced to undergo invasive, clinically unnecessary evaluations to establish whether we are really properly trans enough. The logic is that it is important to establish the medical necessity of the care, but there are lots of surgical procedures that are based on promoting overall quality of life that are based largely on patient choice and do not require the same degree of scrutiny.

Let’s say I want to pursue surgery to change the shape or amount of my breast tissue in order to improve the quality of my life. In order to do this, I will need two recent letters from licensed healthcare providers who can attest that I meet criteria for gender dysphoria, I have been consistent and persistent in my desire to transition, I have reasonable expectations of surgery, I have appropriate support after surgery, and any serious mental health issues are well-managed. Do I have two therapists? No, of course not. Many therapists won’t see you if they know you have another therapist because it’s so opposite common practice. Will my insurance cover me having two simultaneous therapy relationships? Will I be able to take that much time off work or find two therapists who can see me outside my work hours? Are there two therapists in my city and on my insurance plan who are willing to write these letters (and in my case, who I’m not already friends with)?

Let’s say instead I want to have a different surgery. I happen to have pectus excavatum, a congenital condition in which the sternum and ribcage develop in the wrong shape, creating a visibly concave chest. This can put undue pressure on the heart and lungs and cause pain and difficulty with exertion. In severe cases this is generally corrected in childhood, and my case wasn’t severe enough for that. However, it’s caused consistent quality of life issues because I do experience all of those symptoms, and it’s become an increasing concern following things like pneumonia and lung collapse that put my lungs under even more stress. Because of this, my case is in this borderline area where nobody is pressuring me to get this fixed but I could decide that it’s worth doing. This is a dramatically higher-risk procedure versus breast tissue surgeries. It is traditionally an open-chest surgery, in which cartilage is removed and the sternum is broken and repositioned using metal implants that will need to be removed following healing.

Even though this procedure is higher-risk than gender-affirming chest surgeries, even though it requires much longer post-operative inpatient care and is thus more expensive for insurance companies, even though the healing period is dramatically longer, and even though I’m more likely to be dissatisfied wtih this surgery than trans-affirming surgeries, it would be dramatically easier for me to access this surgery, and I could get it without ever discussing it with a therapist, JUST because it isn’t gender-affirming. If I were getting it for gender reasons, it would become a mental health concern and I would need not just one but TWO therapists to affirm that I am really who I say I am and I am competent to make that decision. Even though our community is at incredible risk of poverty, non-insured status, and refusal of care due to clinical discrimination.

Some clinicians have tried to get around the ethical problems with gatekeeping by adding services to the letter-writing process, trying to make the process valuable to trans people. While I think this is often really well-intentioned, it often drags the process out longer for people who don’t necessarily need those services, who wouldn’t be forced to get them if they weren’t trans, and who may not be able to afford them. I think pre- and post-surgical counseling should absolutely be available for all kinds of surgeries because surgery can be massively life-changing and often people don’t have good support in thinking through how to prepare the care and support they’ll need. But trans people shouldn’t be forced to buy that counseling just because we’re trans, no matter how valuable a service it might be.

As clinicians, we need to tell insurance companies that these approval requirements are discriminatory and hurt our relationships with vulnerable clients by violating their bodily autonomy. And in the meantime, we should get trans clients through the process as painlessly as possible and then really offer them the support we can offer, so they can freely decide based on their needs and resources.

After I made this video I also learned about the forthcoming book The Care We Dream Of, edited by Zena Sharman. I really enjoyed Sharman’s last book, which I think I cite in this video, and was excited to order The Care We Dream Of as soon as I learned about it.

Why shouldn’t we have an Office of Diversity & Inclusion?

There are dozens of “Diversity,” “Diversity and Inclusion,” or “Diversity, Equity, and Inclusion” officer jobs opening up across the medical field in response to calls for real solutions to medical inequity, in stark contrast to increasing criticism of diversity and inclusion-centered frameworks for addressing structural inequities. I can relate to thinking that a DEI office would provide a good solution to structural health inequities. I have designed and held some of these jobs myself, and I hold one right now, in fact, whose job description I wrote. I also think the criticisms are good ones, and that ultimately this surge in the Diversity Industry is the wrong move. Let’s talk about why.

Diversity

“Diversity” pretends that the problem is that certain people didn’t show up, when they were kept out. Sociologist Sarah Mayorga says that “diversity” usually means “a seat at the table”—without talking about why people were absent in the first place. She argues that conversations about systemic privilege are swept under the rug, and a new dynamic emerges that centers being the “good type of white person” and “having” diversity. She says that diversity as a commodity becomes a thing that privileged leaders can have rather than something that’s about relationships with other people. Ultimately, she argues, diversity frameworks co-opt calls for consciousness and creates structures in which unconsciousness is renewed and previous unjust power structures (she focuses on whiteness specifically) can be re-inscribed and re-ignored. Mayorga emphasizes equity and anti-racism as an alternative to commodified diversity. She captures the deep need to interrogate the values that led to Black absence in the first place.

Another problem with the “diversity” framework is that it only comes up as a problem. Madhavi Bhasin points out that rushed problem-solving can result in companies investing in initiatives that don’t work, which can hurt their image more than not doing anything because it makes their efforts look insincere. Bhasin encourages initiatives that celebrate difference and educate employees (like teaching about Stonewall during Pride month). Isn’t that just the feel-good stuff Mayorga says we should be avoiding? Not necessarily. There’s nothing inherently un-liberatory about feeling good, and feeling good is an important part of what makes a team actually work, which is why it’s important to make sure everyone can get their needs met in order for a celebration to feel good. In my experience, the work involves a mix of hard fights and great dance parties. Sometimes on the same day.

Bhasin also emphasizes the importance of connecting with people at the level of their specific experiences and thinking flexibly about how structural power relations impact users and their patients and workers and their families; for instance, gender equity efforts have to include dads being empowered to show up for kids, or parenting labor will be displaced from dads, most often onto moms. During the pandemic, women have been pushed out of the workforce to an unprecedented degree. Women were already paid less than men and are often structurally expected to take on care work. As families have needed to adjust to school closures and inaccessible childcare, moms have been left holding the bag. If we think about how our policies might contribute to or confront this pattern, we need to be thinking both about moms who work for our org and moms who co-parent with our org’s employees.

Another potential problem with the diversity framework is that public shows of commitment to diversity can actually make people take the underlying issues less seriously. Rachel Thomas gives a fantastic breakdown of some research on “diversity branding” like diversity statements and awards. She shows that these cues about culture make people at the top of hierarchies dramatically less likely to believe that there could be a problem. In case comparisons, even a single sentence about diversity awards made experimental participants less likely to believe that discrimination had occurred in otherwise-identical cases. Thomas also points out that justice has to be treated like any other business goals: it has to be part of the basic fabric of the organization, and it has to be done well to have good effects.

Inclusion

“Inclusion” reaffirms that some people always belonged, and some people are new. Because of a longstanding culture of “last in, first out” in US businesses, this means that the recently-included have inherently precarious positions. In fact, Kimberlé Williams Crenshaw’s foundational legal paper about intersectionality centrally described a 1976 case in which five Black women sued GM over its seniority policy. The women asserted that because seniority was only available to people who had not been previously excluded from the company in the first place (GM didn’t hire Black women until 1964), seniority was not a neutral basis on which to determine layoffs in the early 1970s. The company’s defense was that there were white women and Black men in the company, so Black women could not claim to be discriminated against on the basis of gender or race. Adopting an “inclusion” framework sets a low ceiling on what could be accomplished and what the organization views as desirable.

Naomi Day describes “diversity” and “inclusion” as buzzwords that mask the realities of unequal and unfair practices. She addresses the implication that “inclusion” sets up an “us versus them” mentality and raises questions—who is doing the including, and who needs to be included? Who gets to decide which people to let in? Day emphasizes that the ultimate goal is to remove systemic barriers within the organization, but in the meantime, be ready to offer additional supports based on what people need.

Physicist Geraldine Cochran says that people string “diversity,” “inclusion,” and “equity” together without thinking about what they mean or how they relate to one another. If we can’t pay attention to these three words, she worries, how are developing nuanced strategic choices about how to actually achieve our goals? Her piece has some fantastic case studies of how to mess up the recipe and as a bonus she links to Chanda Prescod-Weinstein’s syllabus on decolonizing science.

Kẏra argues that centering “diversity and inclusion” posits a fake problem—i.e. sameness—to avoid acknowledging the real problem, oppression. She posits that the opposite of inclusion—something that can be given or taken away again—is liberation.

The Diversity & Inclusion Industry

The Diversity & Inclusion industry has been going strong for thirty years. And that has critics like Eliza Romero concerned. Romero talks about 2-hour seminars to teach white people behave around people of color, noting that it is ridiculous to require people of color to attend. These trainings are extremely common, but they don’t have a particularly salutary effect and sometimes they make things worse.

A lot of people are happy to sell you a brief seminar anyway. And that has some people raising their eyebrows. And it’s easy to see why. If they’ve done any research into which approaches to their work are most effective, they must know that the answer is “we have no idea, probably it doesn’t do much though.” And if they haven’t done any research into which approaches to their work are more effective, well, that might be worse.

Or maybe they know that this is not an effective approach but it’s the only thing they’re allowed to do. Nadia Owusu and Kay Martinez talk about diversity officers being boxed in, shut out, and sometimes fired altogether for actually addressing the issues they were hired to address. Owusu says that equity work is an ongoing, daily practice and commitment that can’t ultimately be outsourced. 

In my current role, brief trainings are a very small part of my overall strategy. Sometimes there’s a specific conceptual confusion or a desire to grow skills in a particular area that is well suited to a brief lecture or workshop, but a need for information or understanding is rarely the problem and should rarely be the solution.

What should we have instead?

Equity

An equity specialist is a demolitions expert who is empowered to bring live explosives into work every day. Because you cannot build without clearing away the old structures. It SUCKS to hear that you have a crack in your foundation, but it still has to come out if you want a solid house. Obviously, you want to have a close relationship and ensure that you’ve got someone who will use their explosives effectively and appropriately, but if there’s never any booms, you should worry, because every foundation in this neighborhood is cracked.

Dignity

Ben Hecht talks about his experience at Living Cities as they approached racial equity. He talks about the need to toss out the model of sticking equity on over top of the structure that existed before, Velcro-style. “To build a new, more inclusive culture, we first needed to be able to see the norms, values, and practices in our institutions that advantage white people and ways of working, to the exclusion and oppression of all others.” Hecht talks about needing to flip the logic of “fitting in” on its head and centering dignity in work.

Specificity

Be specific about the injustices and exclusions you mean to confront, how you’re doing it, and how it’s going. Be prepared to answer questions like “is this actually working?” How will you know if you’re doing a good job? Will it be measured in the presence, absence, or content of qualitative feedback? Is there a retestable measurement in place to track progress?

Advancing Equity & Inclusion: A Guide for Municipalities has a ton of solid resources and strategies. But it says inclusion! I know, it’s fine. It’s from 2015 and they were using the language that Ottawa would connect with. Some of the other language they use also won’t vibe with US uses, but their strategies are solid.

Set actionable, specific goals, concretely measure how you’re doing, and share that information. What will you do if your goals aren’t met? Have a plan that is action-oriented and stays engaged. A question I ask a lot is “would we be willing to make this figure public?” If you don’t want to, you’re already in a situation where you hope users don’t find out about something. Fix that thing.

ALL leaders should have equity-related tasks that they are genuinely responsible for. Your staff equity expert should act as an internal consultant, a partner, and a librarian, but the work of equity has to be structurally shared or it will definitely get forgotten about.

If things get lean, keep the equity work. Equity work is often structured as an extra thing, a cherry on top of work that’s already good-enough without it. When crisis strikes, equity work is the first to go. And that’s part of how inequity in healthcare is created in the first place. When a crunch happens, your first question should be “who is most impacted by this crunch?” Don’t cut any services to them. They have enough on their plate.

Any time you adopt a new policy, have an explicit conversation around who will be differentially impacted by that policy. Incorporate that information in the plan. Decide whether you’d be comfortable publishing your logic about the policy considering this information. If not, keep scheming.

Accountability

The last step, and the one that is most often overlooked, is accountability. You need to set policies, and you also need to uphold them. You need to make commitments to equity, and then you need to measure how you’re doing and dynamically adjust your strategy. When I talk to leaders about vaccine distribution and COVID-19 inequity my question is “how will you know if the vaccine is being administered equitably?” Often, a lot of data about equity either never gets analyzed or gets analyzed but not used.

One of the ways that Officer of Diversity roles break down is it is really two roles. The explicit role has to do with cultivating the environment of the business for workers and/or users, but to do this effectively often means needing to challenge leadership. Because of the power dynamics within leadership-diversity staff relationships, this can require emotional gymnastics in which the diversity officer needs to be straightforward enough to get things done but cautious enough not to hurt anyone’s feelings. There are a few ways to account for this in your plan.

Ultimately, the culture needs to include skills for handling uncomfortable feedback and conversations about equity should be commonplace and routine. I absolutely love Kim Scott’s Radical Candor: Be a Kick-Ass Boss Without Losing Your Humanity as a tool for developing these skills and as a test case for recognizing where professional norms in other organizations reinforce structural oppression. This book is about crafting cultures of feedback generally, but this is just one of many types of important feedback that helps the team grow together. This is also an important theme in Atul Gawande’s The Checklist Manifesto: How to Get Things Right; Gawande puts checklists as the explicit centerpiece of his argument, but a keen reader will see that an equally necessary part of his argument is de-hierarchizing leadership enough to allow lower-ranking workers space to hold decision-makers accountable. Have a plan, get used to sharing responsibility for it, value information about what’s going wrong. Kim Scott and Atul Gawande’s tools here are especially helpful in thinking through how this approach can and should transform all of the work, and not exist in a closet somewhere. It’s not a coincidence that these practices are necessary to addressing problems that are explicitly about hierarchy, but they also improve effectiveness and team culture beyond the scope of macropolitical power dynamics. 

One way to structurally support the equity champion is to break the role of culture transformation and the role of product or service transformation into two separate jobs. This is already present a lot of the time when there’s an external consultant: the person who wanted the consultant and went to bat to bring them in probably isn’t the CEO. That person will automatically back their consultant, and it leaves the consultant more space to work. One option is to keep that energy by having your equity specialist report to someone whose responsibility for the project explicitly includes advocacy for the project and its specialist. The report should be someone who is totally committed to the value of equity and they should have the structural and practical power to push back against anybody in the organization if needed. Another option is to hire more than one specialist and explicitly construct a plan around handling these two aspects of the work effectively. In this case, when the person whose primary job is product or service transformation runs into culture problems, they have a teammate to refer those issues to so they can keep working, and there isn’t as much tension between prioritizing internal versus external changes. The person they report to should still be prepared to back their play when they need to disagree with big bosses.

Shame Resilience

One of the hardest things about medical ethics is that clinicians are often trained to imagine ourselves as (a) good triumphing over evil, heroic badasses who are staving off illness and ignorance and even death itself, and (b) objective and rational thinkers. The superhero identity helps us cope with exploitative and abusive internships, horrifically long hours, secondary trauma, and exposure to terrifying pandemics, environmental disaster, workplace violence, and (for marginalized clinicians) the additional stresses of marginalization at school and work. The expert identity helps us cope with feelings of uncertainty and powerlessness, especially as we become increasingly specialized (and thus increasingly aware of the massive cloud of medical knowledge we will never master) and as the business of medicine increasingly strips away the humanity from the work.

Part of the reason these organizing identities are SO important is because sometimes, these positive frameworks for who we are and why we’re doing the work are all we have to hold onto. Clinicians are at incredibly high risk of suicidality, substance use, compassion fatigue, and burnout. Part of that is because the way clinical education is set up (particularly but not only for physicians), we’re systematically conditioned to feel like we’re not keeping up and definitely not good enough. This ties in with a major function of white supremacist culture, and it requires the construction of defenses like the superhero identity. But when that superhero identity is the only thing between us and despair, we will fight anybody who threatens it.

And that sets us up, frankly, to kill people.

While I love its secondary argument about the need to shift responsibility structure, Atul Gawande’s The Checklist Manifesto centrally explores how difficult it is to get surgeons to use checklists even though they save patients’ lives, and it’s hard because checklists threaten a surgeon’s sense of competency. Doctors were extremely resistant to handwashing between patient exams because they felt that it implied they were dirty and impugned their gentlemanly status. This also creates a need for epistemic hierarchy—I’m the expert and thus I know more than you—that can overwhelm the “rational and objective” clinician’s willingness to tell the truth. Patients with chronic and rare conditions and patients who are members of marginalized groups frequently neglected in med school curriculum often know more than their doctors about their conditions, because they routinely have to educate their doctors on how to treat them. But this inverts the epistemic hierarchy and that’s a big problem for a superhero expert. A study of doctors who had treated trans patients found that doctors perceived their trans patients’ knowledge about trans health to make them difficult patients, and even described reflexively telling patients that their information was wrong even if they actually didn’t know whether it was accurate. I’m struggling to find this citation this morning so I’m going to have to link that later.

Pandemic management has much the same problem. For decades, there have been explicit recommendations to create equity-centered plans for rationing healthcare in the case of a respiratory viral pandemic, and now that it’s here, those plans still don’t exist, because sitting down and thinking about who to let die is not very heroic. It feels awful. It feels helpless and depressing. So we didn’t do it, and now decisions about who to let die are being made on the fly, without guidance, by exhausted and overworked and traumatized people who have spent the last year hoping they won’t accidentally kill their kids or their parents or their spouse by going to work every day. The result is not equity.

Another place this comes up is that moment when you’ve been working SO hard and pouring SO MUCH into equity work and someone says that you’re obviously not even trying. It can be totally deflating, or even enraging. Is nothing ever good enough? Why can’t people appreciate that you’ve been doing your best? Shame says there’s good people and bad people, and maybe you’re bad people. When shame is activated, it feels like someone is saying we’re bad, worthless, totally awful, or worse, that we actually are. When someone is holding shame and power together, it can trigger some truly regrettable outcomes.

The default shame management technique is avoidance—we can avoid situations that feel threatening and avoid people who have brought up shame for us or who might do so. This is a primary mechanism by which equity leaders get pushed back out of organizations. Active shame management strategies and bringing in new ways to think about harm, error, accountability, and ourselves as clinicians and leaders can give us more effective tools for upholding our patients’ and students’ dignity—and our own.

Conclusion

People who have worked in the DEI industry increasingly agree that this framework isn’t sufficient to address the underlying causes of inequity in institutions. DEI posts can sometimes result in positive changes, but they often fall short of what’s needed and that can degrade trust both between the organization and the public and between the organization and the DEI officer. It’s time for a new approach that takes seriously that oppression is baked into the institutions themselves. An expert position may still be a good investment, but putting that capable expert into a DEI office is unlikely to produce the results we all need.

I prefer to structure my work around public sharing of ideas because the siloing of intellectual labor within expensive and exclusionary universities seems like a bad plan. You can support this work by commenting, sharing with friends, offering critiques, and sharing your own ideas in public spaces. If you would like to support my work financially, you can visit ko-fi.com/han.

Social Work’s Thin Blue Line

The following was written last summer but never published. This contains brief descriptions of structural racism and quotes of racist sentiments.

“The problem with Black Lives Matter,” my professor said, “is too many chiefs, not enough Indians.” My breath caught in my throat. He explained that the movement’s lack of clarity of purpose made it “evolve” into All Lives Matter. With my background in social movement studies I have no objection to seriously critiquing movements. But the professor went out of his way to dismiss an antiracist movement with which he was so unfamiliar that he could not differentiate between the movement and its reaction. Co-founder Patrisse Cullors was at that time enrolled in that same university, a high-profile private school that strongly emphasizes its alumni network. Cullors’ paradigm-shifting artistic and political work in community justice, mental health, queer and trans justice, and justice for Black women should make the school proud. So it was odd to hear her work dismissed, particularly in such racist language, in a foundational lecture on antiracism.

As we move together toward abolition, social workers have emerged in the popular imagination as a panacea to the problem of state-sponsored violence against Black and other marginalized communities. It isn’t hard to see why. Social work centers an explicit commitment to social justice and to a person-in-environment view that honors the dignity and worth of people in hard situations. I encountered this view of social work when I was already working in research and policy leadership around health equity, and I was enthralled. Up close, social workers have a lot in common with cops, and it would be a serious mistake to imagine that replacing police with social workers would by itself solve the problem of state-sponsored racism.

Like police, social workers are socialized with a professional identity as beleaguered hero. This hero identity is articulated in Anna Scheyett’s popular TED talk and Holly A. Hartman’s poem, “Social Workers are Everyday Heroes.” Hartman describes social workers as underappreciated except by the exceptionally vulnerable people we serve. Each line sketches a vignette of an abject help-needer, virtuous social worker, and the conclusion, “we are their heroes.” The hero identity, for police and social workers alike, soothes and hides an ego wound. Social workers are routinely expected to carry impossible caseloads. We are warned that no matter what good we do, we will only ever be seen as child-snatchers, but if we don’t remove the child and the child is killed by his abusers, we’ll be blamed for that too. We’re taught that social workers are stigmatized. We do not sit seriously with why communities are sometimes afraid of the power we exercise. We practice feeling wounded by their fear. We practice a defensiveness that responds to fear with disgust, with resentment, with demands for gratitude. 

The hero fantasy creates a therapeutic dynamic that is both dehumanizing and threatening to clients, particularly those who cannot access help elsewhere. In her analysis of care relationships and disability, Care Work: Dreaming Disability Justice, Leah Lakshmi Piepzna-Samarasinha describes the elusive miracle of being helped well as a queer and disabled woman of color. She speaks repeatedly of the humiliation of demands for gratitude without agency. She grieves the way abusive “care” becomes fear of care, refusal to ask for or accept any help at all. When abusive care becomes criminal and a social worker faces penalty my classmates predictably rail against the punishment. I see posts like “it’s sad that this child died, but I just don’t think she should face charges, even if she did falsify her records.” Their defensiveness is reflexive. Or rather, practiced.

The chilling effect the hero identity has on accountability scales all the way up to “refugee support” social workers who meet with unaccompanied minors at the US border and encourage them to open up about their experiences knowing that their therapy notes will be read and used by immigration prosecutors. And it scales all the way down to “too many chiefs, not enough Indians.” When I and my peers have named everyday racism, misogyny, transphobia, homophobia, antisemitism, ableism, and just plain bad science we have been warned not to run afoul of the National Association of Social Workers’ prohibition on “unwarranted criticism.” Most recently, an incoming dean cited this prohibition in a public letter explicitly advising antiracist students to tolerate others’ political beliefs. I have never seen another social worker cite the NASW’s instruction that social workers must create environments that are intolerant to racism, but I have seen many cite NASW’s value of “tolerance” to quiet antiracism. When all unpleasant feedback is framed as “stigma,” attack, and false accusation, social workers are denied the value of our colleagues’ ethical reflections. It becomes harder to learn about other perspectives, to correct our own behavior, and to live and practice in line with the values of our profession. As we are seeing on the national stage, when criticism is censured either criticism dries up or trust does. When good faith feedback is punished, the hurt no longer feels like a mistake.

Moreover, when good faith feedback is punished, the only accountability structures we have are the most formal and, in most cases, the most punitive. These structures individualize problems and deal out penalties, emphasizing secrecy and shame and discouraging people from acknowledging their mistakes or learning from the mistakes of others. Punishment renews the hero’s sense of injury. As in the criminal-carceral system, punishments are distributed unevenly and along predictable fault lines; bias exists in reporting, investigating, and determining institutional responses to clinical errors and misbehavior. These differences become behavioral records that become persistently all-white leadership. Individualizing and punitive responses to problems unfairly blame individuals for institutional problems. Errors are inevitable, but there would be fewer if we had ethical case loads, genuinely liberatory education that models accountability and investment in underserved populations, and adequate time with each case to connect, review, consult, reflectively document, and research. The harm of our mistakes would be mitigated if we trained together in giving and receiving ethical feedback including when it is not solicited. If we treat ethical boundary-setting and objection as critical social work skills and a collaborative investment in communities of practice. When Superman destroys a whole city fighting for justice, he doesn’t have to answer to anybody, because he’s a hero. Social work can’t work like that. And not just us. Atul Gawande finds a troubling God complex in his fellow surgeons. Brené Brown finds it in husbands. Others find it in parents, in teachers, in bureaucrats, in anyone with power over others.

We should certainly abolish police and prisons, because individualizing and punishing social problems is unjust and doesn’t work. But we need parents and schools and hospitals. We need people who can sit with problems so big we fear only a hero can face them. Let’s give up being pretend heroes and cherish what we are. Fallible, tender, human. Let’s be willing to hear that we have made a serious mistake or hurt someone. Let’s be unwilling to accept impossible caseloads, dangerous policies, and collaborations that hurt our clients, and joyfully willing to set serious ethical boundaries so we can begin to be fully, functionally accountable for actions that are legitimately within our control and not for conditions that aren’t. Let’s be neighbors.

#ScholarStrike for Racial Justice

This week, scholars withheld teaching labor for two days in support of the Movement for Black Lives and to direct attention to the need for racial justice in the academy and society at large. In support of the scholar strike, I lectured for about an hour on white supremacist frameworks in LGBT history-telling. Unfortunately, I had computer problems midway through, and the last 30 minutes of the lecture I was not actually broadcasting anymore. I’ll be returning to this topic soon, and in the meantime, here’s the first half of this lecture!

The lecture relies on a case study of a particular LGBT history and like a lot of LGBT histories, this telling is very centered on white cisgender men in particular.

Anti-Fat Bias as a Barrier to Gender Transition Care

I am taking time away from work due to health issues and will be unlikely to generate new content over the next month, so this feels like a great opportunity to share some older material that may still be useful. First up, my thesis! This study explores narratives of gender legitimacy as they are moderated by fatness for trans people in early transition, and how that is further moderated by specific gender identity and race.

This is something I wrote several years ago now, and I wouldn’t have made all the same choices, particularly in how I talk about BMI. Although I was critical of BMI when I wrote this and I still am now, my criticism has developed considerably and the framing I chose is pretty dramatically different from what I would say now. Still, I think it’s generally a useful paper and I don’t know that I’m ever going to get around to editing it for formal publication.

As always you can support my work financially by donating at ko-fi, and I always love to get comments.

Trans Care Begins at… the Software?

Trans and nonbinary care-seekers and their families largely judge a facility’s preparedness and interest in providing trans-friendly care by how often we are addressed by the correct name and pronoun as a signifier of basic dignity and recognition. Being called by the wrong name or pronoun can do immediate harm as humiliation, rejection, and by revealing the person’s gender modality (something they may keep private) or previous name to others, especially in public areas. It also sends a strong message that the clinic or the individual staff member are ignorant of or even hostile to trans and nonbinary communities. Experiences of humiliation or danger and perceptions of clinical incompetence and hostility lead to degraded care outcomes and reduced care-seeking, ultimately contributing to population-level differences like cancer survival rates.

One of the biggest hurdles in generating trans-serving policies at the clinic level has been the electronic health record. While the state where I live and the university where I work have both created systems to recognize trans and nonbinary people in our institutional names and gender markers, the vendors who produce electronic health records have not followed suit, leaving clinics in the position to develop ad hoc workarounds that invariably fall short. The clinics where I have worked have used physical sticky notes, digital sticky notes, nickname fields, and other workarounds, all of which have a high rate of failure because they depend on staff members to depart from normal workflow and may not be visible to all staff members or at all times. For instance, when a pop-up is visible to licensed clinicians but not administrative staff, a person will be misgendered in the waiting room. When a provider is in the habit of opening a chart only after greeting the patient, they will always receive the information too late. If a staff member is not in the habit of double-checking the name field on a chart for every single patient, they may not receive the information at all. Often, I hear from staff members (particularly in high-volume settings) that they do not have time to even open the chart until after an encounter.

Under the current pandemic, the impact is even bigger. When COVID-19 first emerged, health advocates warned that trans and nonbinary people might be at increased risk of contracting COVID-19 due to disproportionate poverty, houselessness, incarceration, uninsured status, and exclusion from formal economies leading to informal labor, where worker protections never apply. COVID-19 has clearly impacted different populations very differently, but trans people, systematically invisible in health records, are not viewed as a hard-hit population. There are no records available of how our community is impacted by COVID-19, so relief projects are not targeting us.

There are many companies that create electronic health records software, and few have made any effort to support clinics in providing adequate care to trans people, even after the American Medical Association’s 2019 establishment of standards for trans-inclusive EHRs.

The following policy brief is a four-page pamphlet outlining the need for trans-inclusive electronic health records, the design requirements for such a system, and how data flow should work. This brief was developed for staff at the University of California, Santa Barbara. Please feel free to use, modify, borrow, and otherwise make it your own, and always check in with trans and nonbinary people in your service area about whether these policies meet their needs.

I love to hear from people who have used the resources I’ve developed. What works, what doesn’t work? If you’d like to support my work financially you can donate here.

Facing COVID-19 Together

When the first signs of pandemic emerged, reports said that we would be through the worst of it in a few weeks. We feared that it would last until summer. Here we are on the cusp of August, with many false starts but no end in sight. There are a lot of unknowns. We need to share space, and sharing space is risky. We are navigating dynamics of power, hierarchy, secrecy, shame, infection, fear, often without acknowledging them. Often nobody knows where the plan came from, per se, but there was a plan and then everybody was doing that. Or, probably more often, not everybody was doing it.

A lot of quick-thinking solutions rely on assumptions and dynamics and scripts that weren’t working before the break and certainly aren’t working now. Are there barbecues this summer? Shopping trips? Is someone in the house getting on a plane? Or a bus? Is the beach okay? Under what conditions? What happens when a customer gets too close? What happens when the boss won’t wear a mask? What happens when police don’t? Can supermom be simultaneous worker and parent and teacher and scared human being indefinitely? What happens when depression means you cannot safely be alone? What happens if someone tests positive? What happens if someone dies?

We should talk.

This resource is informed by my background as a sex educator helping young adults learn to talk about desire, boundaries, and risk. It is informed by my background as a sociologist and health equity researcher with a deep knowledge of ways in which our risks are not equally distributed, that often we are at greatest risk when we need to interact with people who treat us carelessly. That sometimes we navigate risk in situations where our greatest exposure to risk is someone who has demonstrated that they will punish us for asking to be hurt less, or who at the very least could respond this way. It is informed by my (relatively minimal) background in queer history, in the relationship between morality, disease, and personhood, a blending between living and dying, connection and risk, that is deeply felt in the trans and queer spaces where I am home.

It is also informed by many years of relationship anarchy, of navigating risk in sometimes complex networks where intimate risk is shared with people I may not communicate with directly, may not know, may not like, and where risks are navigated in a way that centers autonomy, emphasizes an ecosystem model of responsibility, and values responsiveness to changing circumstances. This discussion framework is just a starting point. Use it or alter it as fits your group and your circumstances.

[Edit to add: I realize in hindsight that after several rounds of drafting, this has taken on increasing resemblance to Atul Gawande’s five end of life questions, which are brilliant and can be used when facing a great multitude of transitions. I want to acknowledge that he is a big (and possibly bigger than intended) influence in this process. His book Being Mortal is amazing, and you can read about his five questions here.]

I have intentionally left these questions case-neutral so this tool could be used to develop a foundation of shared decision making that is scalable and applicable to a wide range of groups and situations. The goal is to create a foundation of shared understanding and priorities to enhance trust, reduce anxiety, and improve the chances of pulling off a group plan when it really matters that everyone is onboard. If your group includes more than about 12 people, I recommend breaking into small groups to discuss and then having a delegate from each group represent the discussion from that group (this can be done recursively to scale to very large groups). This is particularly helpful in hierarchical organizations, where this can allow people to say “someone in my group” or “some people in my group” had a particular concern, where saying “I have this concern” might be intimidating or feel unsafe. Small group-big group discussions also allow people to think through their perspectives before bringing them to the big group. Group discussions also facilitate clarity about what experiences are shared that might not be obvious. This can also be done in the same way that my gender exploration exercise is facilitated, where each person answers questions alone and then the group discusses together. This discussion could take a long time and may need to be done iteratively.

Your group may find it helpful to use a facilitator or mediator to help structure this process. I particularly recommend this in groups where communication or trust have been difficult lately and groups with big power dynamics.

What’s happening now?

Create a shared sense of the situation! How are we all feeling? What’s happening globally, what’s happening locally, what’s happening in this building? How do we know? Are there any ambiguities about what’s happening or disagreement between different sources? How is this situation changing daily functioning? How has the balance of labor changed? What policies, rules, or agreements exist currently that address this situation? How big is the gap between the plan and the reality? What’s working and what’s not working? Who is it working/not working for? How long could we keep doing things exactly as we are doing them? What do we expect to happen next?

How do we understand our own risks?

What is a bad outcome? What would make that more likely? What about our individual risk might not be obvious to someone else in the group? What other factors should be taken into consideration? What feels most threatening, uncertain, out of control, or hard to fix about what’s happening? How can we support each other in managing the threatening, uncertain, out of control, or hard things?

What are our priorities?

What is a good enough outcome? What makes a good enough outcome more likely? What feels most protective, encouraging, or comforting about what’s happening? What can we let go of, postpone, or not worry about right now? What can we definitely NOT let slide even under the circumstances?

What supports are available?

What do we have to work with? What spaces, tools, skills, relationships, practices, and knowledges can we bring to bear? Who has done something like this before? What are other people doing*, and how might that model work or not work in our situation? What do we have in reserve that we might be able to leverage under extreme circumstances? When does that happen? What can we put in place now to support ourselves or each other if things get worse? Who can we talk to if we need more help?

*if you need a jump start, some of my pals are discussing their COVID-19 decision processes here.

What surprises are coming up?

Where are/were we not on the same page? What does that mean for us? Take time to acknowledge insights that are unexpected or that changed your picture of the situation. As you get used to this process and build trust, reflect on surprises as you go. Acknowledging surprises reaffirms the collaborative and flexible nature of the process and builds trust.

What happens next?

What policies, behaviors, or agreements seem like a good idea based on what’s true for us right now? What changes are on the horizon? How will we handle them? How will we know it’s time to reassess these agreements?

What do we do when something goes wrong?

What challenges or conflicts exist in enacting them consistently? When do or when might these policies, behaviors, or agreements not work? What will we do when an agreement or policy breaks? How will we respond to bad-outcome scenarios that feel important to prepare for? How will we respond to people when they are affected by bad outcomes? How do we want people to respond to us if we are affected?

If you use any version of this tool, I’d love to know how it went! If you’d like to support my work financially, you can leave me a tip on ko-fi.